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LaLa Speaks Foundation Was Born From Love, Loss, and a Mother’s Determination

LaLa Speaks Foundation was born from love, loss, and a mother’s determination to make sure more families have the awareness, language, and support they need before crisis becomes tragedy. Jazzie Ford founded LaLa Speaks Foundation in honor of her daughter, Jacqueline “LaLa” Rhone, after LaLa suffered a ruptured brain aneurysm.

 

The loss was devastating. What made it even more painful was realizing how many families do not fully know the warning signs of a brain aneurysm, what questions to ask, or how quickly everything can change.

 

Today, Jazzie uses her voice to turn pain into action through brain health awareness, early intervention education, family advocacy, and community-centered action.

A Mission Rooted in LaLa’s Legacy

LaLa Speaks Foundation is more than an organization. It is a movement created to help families recognize warning signs, respond with urgency, and advocate for care. The foundation’s work includes public awareness, storytelling, youth pathways, community recovery support, and mobile education experiences that meet people where they are. Jazzie’s leadership is shaped by lived experience, faith, community, and the belief that awareness can save lives.

Meet the Founder

Founder, LaLa Speaks Foundation

Brain Health Advocate | Speaker | Community Voice

Jazzie Ford is the Founder and President of LaLa Speaks Foundation, a brain health advocate, speaker, and community voice turning personal loss into lifesaving awareness.

 

After losing her daughter, Jacqueline “LaLa” Rhone, to a ruptured brain aneurysm, Jazzie created the foundation to help families recognize warning signs, advocate sooner, and bring brain health conversations into everyday spaces.

Featured Media Appearance

B-Reel Podcast with Brittany Kyles

Jazzie Ford joined Brittany Kyles on the B-Reel Podcast to share the story behind LaLa Speaks Foundation, the urgency of brain health awareness, and the importance of bringing lifesaving education into everyday spaces.

 

This conversation reflects the heart of the mission: honoring LaLa’s legacy while helping more families recognize warning signs, ask stronger questions, and understand why early intervention matters.

Speaking and Advocacy Focus Areas

Jazzie speaks on topics connected to:

  • Brain aneurysm awareness and early intervention
  • Family advocacy during medical crisis
  • The cost of not knowing the warning signs
  • Turning grief into mission-centered action
  • Community education and health equity
  • Founder-led nonprofit leadership
  • Youth voice, storytelling, and purpose
  • Building awareness movements from lived experience

Signature Speaking Topics

Every 18 Minutes: Why Brain Aneurysm Awareness Cannot Wait

A powerful awareness conversation about warning signs, urgency, early intervention, and the importance of community education.

The Cost of Not Knowing

A personal and advocacy-centered talk about missed awareness, delayed recognition, and why families need language before crisis happens.

From Loss to Lifesaving Advocacy

Jazzie shares the story behind LaLa Speaks Foundation and how LaLa’s legacy became a public awareness mission.

Turning Pain Into Passion

A motivational and mission-centered conversation for women’s groups, founder spaces, faith communities, nonprofit audiences, and community gatherings.

Brain Health Belongs in Everyday Spaces

A call to bring brain health education beyond medical settings and into the places where families live, gather, work, learn, and heal.

Invite Jazzie to Speak

Jazzie is available for select speaking engagements, interviews, panels, community conversations, podcasts, media features, and mission-aligned events.

To invite Jazzie Ford or LaLa Speaks Foundation to participate in an upcoming opportunity, please contact:

hello@lalaspeaksfoundation.org | 314-816-0067 | lalaspeaksfoundation.org

Featured Partners

We are grateful for the support of organizations that share our commitment to health equity and brain aneurysm awareness.

Missouri Baptist Foundation • St. Louis Philanthropic Organization • Midland States Bank Foundation • Cardinals Care • Affinia Healthcare • Family Care Health Centers • Alzheimer's Foundation • Walmart Collinsville, IL Store #2425 • Nami St. Louis • The Post Building - VOP News STL

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