Advocacy Toolkit
Advocacy begins with awareness, but it grows through action. This toolkit was created to help supporters, partners, and community members raise their voices, share trusted information, and stand with us in pushing for greater visibility around brain aneurysm awareness and brain health equity.
Brain aneurysms remain underfunded, overlooked, and too often left out of the public conversations and policy decisions that shape research, care, and long-term support. This toolkit is designed to help more people understand what is at stake, why advocacy matters, and how to take meaningful action that supports survivors, families, and future lives. As reflected in the toolkit, our advocacy priorities include stronger public recognition, increased research support, and a greater place for brain aneurysm awareness in health policy conversations.
What This Toolkit Supports
This toolkit helps supporters take part in awareness-driven advocacy by offering guidance that connects education to action. It was created to support:
- greater public visibility around brain aneurysm awareness
- stronger advocacy at the local, state, and national levels
- increased understanding of Ellie’s Law and research funding priorities
- direct action through outreach to legislators and public officials
- a stronger voice for survivors, families, and underserved communities
What You’ll Find Inside
Inside this toolkit, visitors will find information designed to help them engage with the issue in a meaningful way, including:
- advocacy messaging and awareness language
- legislative context and policy priorities
- Ellie’s Law background and why it matters
- action steps for contacting lawmakers
- guidance for participating through the LaLa Speaks advocacy process
Take Action
Advocacy becomes stronger when more people participate. Whether you are new to this work or already engaged, this toolkit offers a starting point for using your voice with purpose. From learning more about Ellie’s Law to finding your legislators and taking direct action, this resource was created to make participation easier and more accessible.